The mum of a little boy she thought she’d never get to take home is getting ready to wave her son off at the school gates as he starts year one this September.

Five year old Jay Carter, from Crawley, was born with tracheo-oesophageal fistula – a condition where an abnormal connection runs between the trachea and oesophagus. Jay’s condition was so severe that Mum Jo didn’t think he’d survive.

Boy who defied doctors’ expectations packs bag ready for school

Jay with Mum Jo in hospital

For the following year, Jay battled for his life undergoing numerous procedures – including having an oesophagus rebuilt – at Great Ormond Street Hospital (GOSH).

Because of his condition, Jay has been fed through a tube all his life and has also required a stoma bag on his neck to catch fluid which passes through the abnormal connection.

Boy who defied doctors’ expectations packs bag ready for school

Jay has just had a gastric pull up where part of Jay’s oesophagus was replaced with reconstructed stomach tissue and his stomach was moved up into his chest

For the last five years, Jay has undergone many procedures and was finally strong enough to undergo something called a gastric pull up at GOSH, where part of his oesophagus was replaced with reconstructed stomach tissue and his stomach was moved up into his chest.

As a result, Jay no longer has to have the stoma bag on his neck.

He is also trying food for the first time and enjoying a few teaspoons of yoghurt daily, in addition to his tube feeds, before heading to school to start year one.

Mum Jo said, “Jay has spent a lot of his life in hospital, mainly at GOSH and to be completely honest, I never thought I’d be taking him home. As a mother, when your child is so poorly your mind immediately jumps to the worst outcome. But as a family we received so much support for which we will always be grateful for, not only from the hospital team but from The Sick Children’s Trust. The charity were there for us at the beginning of Jay’s journey, giving us emotional support and free ‘Home from Home’ accommodation for four months during Jay’s treatment and latterly as he underwent the gastric pull up operation.

“Our son has surpassed everyone’s expectations and he’s very much loved by all who meet him. He’s so resilient and such a fighter. When Jay had to leave reception early for his operation, he was determined to make it out of hospital to enjoy the summer holidays with his brother and get ready to start year one.

“When Jay goes back to school and starts his next chapter I will be the proudest mum in the playground. Jay has come so far and doesn’t let anything hold him back – not even his war wounds.”

Jay underwent the gastric pull up operation in July and made a speedy recovery, and was back home within a few weeks.

 

We all wish Jay a fantastic start to school!

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Nisha Kotecha is the Founder of Good News Shared. Having worked and volunteered for charities in the UK for over 10 years, Nisha is on a mission to highlight how amazing charities are.

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